Treatment
Amyotrophic Lateral Sclerosis (ALS)

Unfortunately, there is no cure for ALS. The goal of treatment is to help patients remain as independent as possible and slow progression of the disease. If you have been diagnosed with the disease, you will need to learn as much as you can about ALS and prepare for your future challenges. Know what you can expect to encounter, and above all, never stop asking questions.

Write down any questions you think of, and be sure to take the list with you on your next doctor’s visit. Some questions to ask may include:

  • How fast will the disease progress?
  • What can I expect will happen to me?
  • Can physical therapy help me to learn ways to work around my disability?
  • Should I change my diet?
  • Can massage or relaxation techniques help me?
  • Are there complementary or alternative therapies that can help relieve my symptoms?

Medications

  • Are there any medications that can help control my symptoms?
  • Should I take a medication for anxiety or depression?
  • Is there something I can take to help me stop drooling?

Breathing

  • Can I choose whether or not to use a ventilator for help with breathing?
  • Will I need to use a BiPAP machine to help me breathe while I sleep?

Mobility/Walking

  • How soon will I need to use a powered wheelchair?
  • Where can I learn more about wheelchairs?

Communication

  • What communication aids are available?
  • Can I get a special computer to help me communicate?
  • Can a speech therapist help me?

Research

  • Are there any clinical trials that I can consider participating in?
  • Where can I read the latest research being done on ALS?

Emotional and Financial Support

  • Are there any local ALS support groups?
  • Where can I find help with paying for special services, medications, or at-home care?


Remember that caregivers go through their own range of emotions during this time. It is vital that caregivers concentrate on their own health and well-being as well as the patient’s.

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